Celiac Disease Tests Diagnosis

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Celiac Disease Tests Diagnosis

Celiac Disease Tests Diagnosis

Does She Have Celiac Disease Or Not?My daughter was tested for Celiac Disease recently. The first test came back as 'results may support a Diagnosis of Celiac disease, but are not specific.' So They tested again and it came back negative. My daughter STILL is having major stomach problems which she has had since about age 2 or younger and gets nauseated and remains on miralax treatments and they give her no explanation other than maybe she is lactose intolerent. What do i do? There is OBVIOUSLY something wrong here! I myself have a major allergy to gluten. I am tired as is she of being in pain. She seems to even have mood swings associated with this issue. I too have mood swings associated with my allergy. Where can i go to get down to this problem and do you think a 3rd test should be given? Is it possible that this Disease is that hard to diagnose or is there something else we should be looking at? Please help. =[ [ Read More ]

Celiac Disease Do Not Know Paternal Side Donor Insemination?Okay, after a long and painful few months I was finally given a Diagnosis of Celiac disease. For those of you who do not know Celiac is a hereditary condition. It can also do damage with giving the victim no symptoms of having the condition. Therefore, all first and second degree relatives are required to get tested. There is only one problem. I was born through the anonymous form of Donor insemination/artifical insemination. Therefore, my biological father and I have no knowledge of each other. I do not know which saide of the family the Disease came from. The test to check for the 'celiac gene' is nearly $500. If it is coming from ym paternal side, then I do not want to have to put my entire family through the procress of bloodwork, and endoscopies. If their anyway to find out from the donor bank if my 'father' had Celiac disease. Or better yet, (anyone who is able to do this, I will create a bunch of black questions for you to answer and automatically vote you best to give the points.) Is there any possible way to use this condition as a way to contact the biological father. I am under 18, that makes it more difficult. I am desperate to find him, please do not just send me to the donor sibling registry. I want to know who my father is so desperately. my mother's test results came back negative for Celiac disease. [ Read More ]

Diagnosis Please - Celiac's Disease?I find the more wheat I eat, the more I have these symptoms: Cloudy urine Headaches Muscle tension Nausea Irregularity Soar throat Mucus build-up in throat/nose Sore glands in neck Depressed mood Heartburn I've been tested at a naturopath for food sensitivities. Wheat and every other grain he tested were absolutely out, but I've never been to see about Celiac's. If it is Celiac's, why is it important to stay clear of gluten other than feeling well? [ Read More ]

Celiac Disease Results?I recently requested all my sons records from the hospital and came across test results that he had 10 months ago for Celiac serology and it looks to me like it came back positive, but the doctor at the time reported to me that he did not have it. If there is anyone that can interpret these results and let me know if he does or does not have Celiac Disease I would truly appreciate it. He was 19 months old at the time of the test....he is now 29 months. Positive AGA IgG 10.3 U/ml Negative AGA IgA - 1.7 U/ml Negative TTG IgA 0.1 U/ml Negative EMA IgA no numbers Summary Interpretation says Results may support a Diagnosis of Celiac disease, but are not specific. THANKS!!! Thanks for that helpful info Anama. Here are the reference ranges. Positive AGA IgG 10.3 U/ml <10.0 U/ml Negative AGA IgA - 1.7 U/ml <5.0 U/ml Negative TTG IgA 0.1 U/ml <4.0 U/ml Negative EMA IgA no numbers Negative Thanks again! [ Read More ]

Dr. Says I May Have Celiac Disease But I'm Allergic To Corn... What Would I Be Able To Eat?!?After years of stomach problems, I am finally looking into their cause. So far we have found I am allergic to corn and peanuts, but this is not the final diagnosis. My doctors have been recently talking about the possibility of it being Coeliac Disease or another condition that I think was Eosinophilic Esophagitis, but not positive on that. Anyway, if after all my Tests and procedures have been done and it turns out I do have Coeliac disease, then what would I be able to eat, seeing as I am allergic to corn (a common alternative)? [ Read More ]

Is E, Nodosome Connected To Celiac Disease?I have had chronic Erythema nodosome for 30 years but it hasn't bothered me much during the past 2 years. 3 years ago I was diagnosed as having Celiac disease. For the past half a year the symptoms of Celiac Disease have been extreme. (I'm a roll a day girl) Now the E. nodosome has returned with a vengence. I have never experienced the typical dime to quarter size patch of inflammation I read about on the internet -rather it's usually an area about 6 inches across, is flaming red, tight and feels quite deep - deep enough to tighten the muscles making it very painful to even lift my feet. They are presenting on the fronts of my legs, which is most commonly what happens. My question is - are the 2 symptoms related? I have recently seen associations cited for Chrone's disease. My Dr. is reluctant to rescope as he feels I have a working Diagnosis and we should go with those test results for another 4 years. Between the 2 problems, I'm not having much fun at all. Please help if you can, suggesting treatment that might alleviate this. I was prescribed Lugol's solution, but have to admint I never actually used it because of the staining properties - I had just spent thousands on dental work - and the skull and crossbones on the jar. I was afraid of it. I am taking an international flight in a month and want to know if support stockings are recommended as well. Although this is a condition of the fatty tissue, it feels like vericose veins (ropey) and I would like some assurance that there is no connection to thrombosis. Thanks. [ Read More ]

Celiac Disease Is Tearing My Family Apart?This is going to sound totally ridiculous (it is even to me) but it really is an issue. I am a 20-year old student who still lives with his family. My dad and I have recently discovered we have Celiac Disease or some form of gluten intolerance. The problem is we went gluten free for awhile and missed our window for Diagnosis (we have to be regularly consuming gluten to be tested, we don't want to do that). Our GI doc said to play it safe for now and avoid wheat products. But something is just not right. My dad and I have extremely unusual reactions when we have wheat products, and we are ultra-ultra sensitive it seems. We take a risk every time we eat out even if we go to a place that has a gluten-free menu. The slightest cross-contamination affects us. If we get a trace of gluten we not only get swollen, sick, nauseated, and have bowel problems, we get heavy psychological symptoms. When I eat gluten, I become crazy but I internalize it. I get tormented with nightmarish thoughts and I get depressed and suicidal. I have extremely bad nightmares at night as well. I had to go to counseling a little before I found out I had Celiac Disease because I was so deeply depressed all the time. Also when I'm on gluten I have a lapse in judgment and don't always choose my words wisely when I talk to people. I scare people away because I get weird. When I'm off gluten, I attract a lot of people around me, and it's easy to make new friends. My dad on the other hand becomes violent when he is on gluten. My dad is normally a very nice, subtle guy but when he's on gluten he'll become crazy like me but he'll be more external. He'll be violently overreactive especially to my 16-year-old brother's arguments. When my brother fights my parents like normal teenagers do, my dad taunts him and tries to engage in a physical fight with him. Then he'll pin him to the ground and sometimes hurt him. He just becomes nuts. The problem is my dad is not diligent at all. He'll only avoid breads and that is about it. He doesn't want to embark on the inconvenience of an organic gluten-free diet. He still eats out constantly which is dangerous and he is not very diligent and he always gets a dose of cross-contamination. I know my dad's mother had a boatload of health problems: bloating, nausea, anger issues, irrationality, and just overall feeling sick all the time. She died of bone cancer. My GI doc thinks she had our condition, and the cancer was caused by it. Now my older brother, 23, who lives 20 miles away from us called my mom and said he thinks he has this gluten intolerance condition too. He has been suffering from the bloating, nauseau, irritability symptoms that the rest of us have. So immediately we forwarded him to our GI doc for a test. We're still waiting for word on the results. But my question is this. How can Celiac Disease be this ridiculous? Is this a somewhat common impact on households? Can symptoms really be this damaging even on a family-scale? I'm getting frustrated over this whole gluten thing and the impact it is causing. How do I deal with it? [ Read More ]

Possible Case Of Celiac Disease.?Been suffering with a range of unexplained symptoms for several years (that also includes possible dumping syndrome), pre-diabetes with unexplained hypoglycemia, abdominal cramping, light tan stool that floats, diarrhea, hair loss, vitamin B12 deficiency and many others (i.e. rapid weight loss, can eat things like a whole pizza and maintain the same weight, and ofcourse, suffer the after effects). So far the only Diagnosis I have received are gallstone and IBS (due to unknown gastrointestinal symptoms). I have done many exams as you may have guessed and been to several doctors, none of them were able to properly diagnose me. I stumbled upon this 'celiac disease', which seem to be fairly coherent with what I'm experiencing (emphasizing the cramping), and I saw that the only way to diagnose it is either blood test or biopsy, which would be impossible to tell with the list of exams I have done. Opinions will be welcomed. [ Read More ]

Do I Really Have Celiac Disease? I've Been Diagnosed With It, However, I Have Major Doubts.?Do I really have Celiacs Disease? Here are my test results. Tissue Transglutaminase IgA Antibody by EIA: NEGATIVE Immunoglobulin A (IGA): 226 (40 - 350 normal range) Endomysial Antibody IgA (EMA): NEGATIVE I was then given a colonoscopy/endoscopy. My results are as follows: HISTORY: Diarrhea. Endoscopic impression: Normal examined duodenum. This was biopsied. The examination was otherwise normal. Please see EGD report. GROSS: 1. Duodenum biopsies Five soft tissue bits range from .3 to .4 cm. DF Microscopic Diagnosis: 1. Duodenum, biopsy: Surface intraepithelial lymphocytosis with preserved villous architecture. Please see comment. COMMENT: This patient has similar finding in the colon, suggesting that this is probably gluten sensitive enteropathy. HISTORY: Indications: Clinically significant diarrhea of unexplained origin. Endoscopic impression: Scattered apthous ulcers in the rectosigmoid colon. Inflammation vs. preparation artifact. Biopsies taken.... The terminal ileum is normal. This was biopsied. Please see colonoscopy report. 'talks of different tissue samples taken from right colon, left colon, terminal ileum and rectosigmoid' MICROSCOPIC DIAGNOSIS: 1. Terminal ileum, biopsies: No significant abnormalities. 2-4. Colon, right, left and rectosigmoid, biopsies: Increased intraepithelial lymphocytes. Please see comment. COMMENT: The colon biopsies show some but not all of the changes of lymphocytic colitis. this can be seen in resolving infectious colitis as well as in patients with Celiac Disease. I was in the Peace Corps in Honduras. At the age of 29 I was having some major stomach problems. I am now 31, and all seems to be normal. (even with consumption of wheat) I sometimes get bloated, I sometimes have acid reflux and my stool has floated for about a year now. Please help. My insurance will not allow me a second opinion. I had hamburgers for lunch and pizza for dinner last week and nothing happened. [ Read More ]

Am I A Celiac Or Not?i was recently tested for Celiac disease. My blood culture came back positive but my biopsy negative. I was consuming gluten for the weeks leading up to my test but i confess i missed a few days..i have just however realised that i was taking laxatives throughout my gluten consumption to cope with bloating and constipation as i have done for months so i thought nothing of taking them leading up to my biopsy automatically. Is there any way taking laxatives could have given me a false negative result in the biopsy but positive in my blood culture. Please help. people have said to me to go gluten free if it makes me feel better, however if i do not get diagnosed my gluten free food will cost a fortune..if i get diagnosed i get my food prescribed for £100 a year. I cant afford to go gluten free without diagnosis. could any answers be kept quite simple and to the point please, thankyou in adavnce my symptoms are:- severe agonising bloating and cramps flatulence and other simptoms of IBS head aches weak bones and teeth constant tiredness lethargy bouts of depression short tempered and moody aching and clicking bones and joints spaced out and unable to concentrate. i only use laxatives if i get to around 3 to 4 days without movement. Which can last upto a week and a half. I went off gluten after the test and felt better im back on gluten and have been for 3 days and my bowels now will not stop moving. Im in agony and my stool is fatty and fowl. to Celiac - i am not asking what celiacs Disease is because i know what it is. I am asking could laxatives give a false negative duodenal biopsy reading. [ Read More ]

Unexplained Symptoms And No Diagnosis?My mother is having a terrible time getting to the bottom of her medical issue. Any good solid information is welcomed. She states: I have been diagnosed with Hashimotos Thyroiditis and Low Vitamin D. Although my labs show that I am in the early stages of the Disease and there is no evidence that I have been affected by the Disease (in the form of hypothyroidism) I have all the symptoms one could imagine. I have had every lab test I can think of and an ultrasound that showed goiters on my thyroid. Biopsy showed no cancer. I have had TSH, Free T4, T3, am still waiting on results for Free T3. I have had a full range of hormone test. I cannot think of anything I have not had that might tell me something, but then, I am not the doctor. I have been tested for Celiac Disease, Pernicious Anemia, Lupus low calcium and everything comes out negative, everything. I have strange symptoms that don’t seem to fit hypothyroidism, exactly, but could fit low T3 or low Dopamine. They are: poor balance, tingling in face, lips, and hands. In addition to the typical ones for hypothyroidism. I also am experiencing rather extreme jolts as I sleep, as if I am having a seizure and strange sensations in my legs, mostly left leg. So far, my doctors have no explanation. My endocrinologist agreed to put me on a very low dose of thyroid replacement. My neurologist thinks I would be helped with antidepressants. I have had one MRI to rule out MS and am having another to rule out further Diagnosis of MS and may have a spinal tap to rule out any odd infections of the brain. I have symptoms of Parkinson’s, or rather, low dopamine. So, my next Dr. visit is with a Rheumatologist. I have also seen an alternative Dr. and am awaiting test results. He said it looked like MS and also thyroid issues. He feels, like me, that we are just missing one important piece of information. We are both hoping it is the Free T3. Any suggestions? [ Read More ]

Looking For A Diagnosis ... Does Anyone Have Similar Symptoms?Here is a list of symptoms I have. All symptoms have become present within the last 3 years, except for asthma. I have had asthma my whole life. I am looking for answers because any research I have done and doctors I have seen have not been able to Diagnosis me with the underlying cause. -asthma -MRSA (several outbreaks, last one was 1 1/2 years ago) -Severe skin rash on hands and feet (dermatologist refers to as dermatitis) -eczema -Alopecia -Hives -Urinary Tract Infections -tingling in hands and feet -moody I just got a call from my doctor, informing me that the Tests I took most recently all came back negative. These Tests included thyroid, autoimmune, anemia, and Celiac disease. All symptoms started to appear about 3 years ago when I had pneumonia. At the same time, I had my first outbreak of MRSA (which appeared in 3 separate places at once) and this is when my hair started to fall out (Alopecia). I am becoming more and more upset about my health problems because I cannot find any answers. I do not know what is the cause for all these issues. I am lost with where to turn next, so I am asking this to the public to see if anyone else is in a similar situation or knows what I have. I absolutely appreciate any answers or stories. Thank You! [ Read More ]

Is Celiac ALWAYS Hereditary?I'm wondering if Celiac Disease is always hereditary. Does someone in my family have to have it for me to be able to? I know if someone you're closely related to has it you're more likely to have it. I know that Grave's Disease runs somewhere on my moms side of the family, but not the immediate family. For years I've gotten really sharp stomach pain that everyone tells me is my appendix (it would have burst by now I think...) or gas (it's not gas!) and I've had other symptoms as well but what bothers me is the stomach pain. I'm looking it up trying to figure out the possibilities to get tested for, so don't scold about self-diagnosis, I want to make sure I'm thoroughly tested. Any info would be great! I wont bother even getting tested if it HAS to be hereditary. Thanks! :) I have random dizzy spells where it feels like my brain flops over, keep running into doorways, losing my balance, I usually have great reflexes and coordination but not lately, headaches worse than normal, eating anything had me either on the couch or in the bathroom going, 'ouuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuuch' for hours. I started GF two days ago and so far feel really great, my stomach is not hurting and I can still eat really good food. I was still concerned it was my appendix if no one in my family had it, but Ill keep going GF and see what happens! Thank you! [ Read More ]

Help? Need Diagnosis Of Rare Digestive Disorder Possibly Related To Food Allergy?My girlfriend has been having stomach and digestion problems her whole life. I'm not sure if there is any correlation with her chornic migraines, but I have determined that she is accutley alergic to soy, msg, and letuce. We though she had Celiac disease, but she did not test positive for the glueten spore. Come to find almost all bread contains soy flour. She has had two endoscapies and also had the gastrointestinal area checked several times. She was doing good for a while on a completly soy free and msg diet but recently is always complaining of her stomache feeling lousy. She's afraid to eat anything in the fear of feeling sick and I really can't blame her. Sometimes she says it feels like she's digesting razors going down her small intestine and feels every inch of it through. Since they would've caught an ulcer on the endoscapy that's been rulled out. I though it might be chrons Disease but thought that woud've came up too on a test. Could all her sympoms be a hormonal problem? She has already been fully tested for Celiac Disease and that was not it. They did find elevated levels of white blood cells so it seems as if something is attacking her digestive tracks which is similar to what happens when she eats soy or lettuce or msg. I don't know if the eleveated blood cell info might help. Conventional Doctors can't figure out whats wrong with her. Well, it turns out the endoscapy last october didn't catch her gastracitus and ulcer. She was vomitting dried and fresh blood yesterday and the ER found that she has an ulcer in her stomach caused from gastrocitus. Essentially her stomach is producing too much stomach acid. Now it's only to find out why this is happening. [ Read More ]

Celiac Disease Tests Diagnosis